All those people who refused to take COVID seriously have a lot of blood on their hands.
yeah her YouTube channel still posts updates from time to time. shoutout to her husband too. they got married and almost immediately became patient/caretaker. it’s probably exhausting for both but they’re both resilient, hopefully they’ll get out of it and live a stress free happy life. sure deserve it after going through this.
Ooo interesting. The parallels with CFS are fascinating.
I wasn’t even aware of that. chronic fatigue syndrome was actually real.
I thought I was just like side- depression.
is there anything known about CFS?
what causes it or how long it lasts or anything?
I know nothing about it except for like a comedy sketch from the 2000s at some point.
Lifelong disease usually triggered by viral infections. Very functionally disabling.
Known immune abnormalities which seem to affect the brain and mitochondria. I think @Neurologist@mander.xyz is specialised in it.
Also “chronic fatigue syndrome” was the name back when it was classified as psychological. Now that it’s classified as neuroimmune the name has been changed to Myalgic Encephalomyelitsis (ME) (Or ME/CFS).
As usual though for a medium quality source like ScienceAlert, the article is written by someone who has no specialisation in Long COVID/ME, or even medicine. So there’s a bit of oversimplification and overstating findings from one study in that article. Very few researchers think it’s a brain injury. Most think the immune system has been compromised (with some deficiencies and abnormalities) and it’s affecting the brain in unknown ways (hence the abnormalities found. It’s weird though because the immune system problems seem to cause some immunodeficiencies but also autoimmune reactions. They’ll need to be quite a bit more studies before we get a clear picture.
Couldn’t have said it better. And yes, science journalism often is basically repeating and dumbing down what a study says, but in science, and especially in medicine, a lot of studies tend to be wrong, make false assumptions, or overstate their findings, while journalists tend to take them for their word. There’s a reason you hear of a new cancer treatment in the news every other week but few actually make it past FDA approval.
wow, thank you so much for the detailed answer, I’m fascinated chronic fatigue syndrome turned out to be a neuroimmune disorder.
is ME genetic or do you just get unlucky as far as we know so far?
CFS is a syndrome rather than a disease because, until recently, it only presented as symptoms instead of as an identifiable problem with a person. I know that a some people who get diagnosed for CFS get later diagnoses as neurological disorders like multiple sclerosis.
It sounds like the more powerful MRI scanners are seeing inflammation in the rest of those suffering from CFS.
That would mean CFS is a lifelong degenerative condition.
Hey I’m a researcher who works on ME (in the past called CFS).
ME/CFS is currently classified as a disease/biological illness according to the CDC.
ME is a disease state in itself. We don’t know much about it, but it can’t be explained by other diagnoses, as the defining factor, neuro-immune abnormalities including immune activation showing up post exertion is unique to it. You’re completely right that we don’t yet have a reliable biomarker. We have a test that differentiates from healthy controls, but it was discontinued for ethical reasons because conducting the test leads to a sometimes permanent worsening of the illness.
In the past it’s been mixed up and jumbled a lot, but the picture is getting clearer.
There have been a few case reports of degenerative forms of the illness. But in general it takes a more classical relapsing remitting pattern. Although even in less bad stages some patients are severely functionally disabled, even bedridden and tubefed. It has a really wide range of severities with the least severely affected able to work part time and walk and travel, while the most severe might not even be able to communicate.
this is the extent of what I knew about CFS, I never heard of ME, I thought CFE was still a collection of symptoms that didn’t even indicate a single underlying syndrome.
I like the progress, clearly seeing brain stem inflammation sounds like comic book talk from 20 years ago.
they’re going to see inflamed dendrites next.
oh but isn’t clogged dendrites how they identify multiple sclerosis already?
clearly I have to read more about this. catch up a bit.
thanks for the explanation.
Much the same like we all get depressed - a normal & necessary mechanism that if it lasts for too long no longer works & causes damage.
Chronic fatigue syndrome.
It’s another one like long covid where so much of the medical community thinks it’s all in people’s heads and not real, but unlike long covid it’s less prevalent and thus studied less. We still don’t know what it is.
There’s even some hopes that figuring out long covid might lead to new ways to look into what cfs really is.
I wish people cared about dealing with covid still. Once corporate America got that sign off not to care there was no going back.
Seriously. I spent 2 days in the hospital last week with bilateral pulmonary embolisms after having COVID the middle of last month. I was NOT otherwise at risk for clots. A terrible surprise that I’ll no doubt be recovering from for some time. I’m on a blood thinner for 6 months.
great.
remember when all the politicians and people who control things got covid?
What a totally normal and cool planet this is.
I’m still afraid of long-c. I insisted that we wore masks in airports and on flights when we took a trip last month. We live life in a normal fashion everywhere else (because we’re vaxxed and boosted), but I wasn’t willing to risk that environment.
If they’re US American, a plane is likely the only public transportation they’ve ever taken. If they live anywhere remotely rural, it’s likely the only one available to them.
Signed, -An American
I was going to say “almost every American takes a school bus at one point in their life” then I looked it up and was disgusted to find that recently more children are driven to school than take the bus.
Airports and planes see a lot of traffic from all over the world constantly rotating through. With some variation depending on the size of the city and your personal schedule, you’re running into more of the same people on normal public transport.
And you’re in very close proximity for a very long time. I don’t know how HVAC works on an aircraft but I assume there’s a large amount of recirculation.
I was on buses and trains this morning. They weren’t nearly as crowded, the trips were a lot shorter, the air moved around at every stop, and like you said, they’re all pretty local, so low risk of someone importing weird diseases. At least on the subways, you should still wear a mask if only because of the air quality. There’s a lot of brake dust floating around.
Do masks help the wearer? Last time I heard it didn’t. Probably wrong.
Either way, good for you…even if it only helps others that’s a good reason!
The droplet theory was dropped within the first few months. It turns out it’s not just COVID; many infections we thought were spread by droplets are actually airborne.
