62 points

Is it me that finds it weird signing off her own tweets with her name, when her username is literally right there?

It’s just a shame the (presumably US-based) healthcare system is a clusterfuck, because that bit of expensive paper with a diagnosis on it would likely open up a whole host of avenues for exploration of the condition.

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16 points

It’s just a shame the (presumably US-based) healthcare system is a clusterfuck,

Laughs in disembowelled NHS…

When the government controlling the public health service doesn’t give a shit about the actual public, especially those who it sees as “burdens”, you get more or less the same shit as if it didn’t exist at all.

I was on a waiting list for 2 years to get an autism diagnosis, and the only way around this is to go private and pay an absolute fortune (this is of course by design - deprive the NHS of its specialists in favour of for profit private clinics).

Want therapy? Wait at least 8 months. Honest about being suicidal? No need to wait that long, here are some cops to come and take you away…

My point is the op is correct no matter where you are in the world, and people who insist that self diagnosis isn’t valid seriously need to check their privilege.

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9 points

I partly agree with you, but not completely. There are benefits to claiming you are ADHD, like in the UK being covered as a disability, thus employers are required to make reasonable adjustments for work comfort e.g. Noise cancelling headphones.

People without ADHD that claim to be can shew the expectations of what ADHD people go through in the wrong direction.

That said: I ended up waiting like 3 years for my diagnosis (and I had to chase those bastards every single time for a response), so if my employer didn’t trust me and wasn’t understanding of my struggles I would have been sacked by now.

That said; needing to pay £1,000s to get essential mental health care is outrageous. I’d take a reasonable self-assessment any day over expecting people to pay that.

But I wish people would stop voting for the government party that trying to convince them that immigrants are stealing jobs and they should underfund health care to keep the economy safe.

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4 points

That said: I ended up waiting like 3 years for my diagnosis (and I had to chase those bastards every single time for a response),

That sounds this close ->||<- to being some Catch 22 nonsense where they use your success in managing to follow up as an excuse to claim you’re not ADHD.

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2 points

People without ADHD that claim to be can shew the expectations of what ADHD people go through in the wrong direction.

This is a fiction used to deprive all of us of services and accommodation (by making it ever harder to pass the gatekeeping).

Neurodiverse people are generally treated like crap in the work place and generally in society, the idea that people are making it up to gain some imaginary perks truly is ridiculous to anyone who has ever tried getting any support. You having a decent boss is one of those privileges I mentioned that you should check, because as you go on to say, if that wasn’t the case, and it isn’t for many, you’d be sacked, as many are, if they ever get employed in the first place.

As for voting, you basically describing both parties at this point, and that’s because the whole system is a sham, as is the idea that voting actually gives us any say or control. It’s only by looking outside of the bucket they have us in that we will find the way to freedom.

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4 points

I lucked out - was on the wait list just before covid, and seemingly covid stopped the tests and worked through the waitlist instead.

I was diagnosed and prescribed after waiting 1.5 years. Now it seems people are expected to wait over double that.

No wonder there has been a boom in private healthcare diagnosis

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3 points

My 2 year wait was over a decade ago, so looong before covid. The fact that things are worse now isn’t really surprising considering the service is now basically a hollowed out carcass with several hundred private firms picking it apart…

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9 points

In germany its free but you just dont get a place anywhere. Diagnosis maybe after a year, therapy never.

And you get a blood test to see you dont use Cannabis etc, because 1+1=2

Both have “a risk for phsychosis or shizophrenia”, so combining will obviously lead to crazy dangers. Thats the state of science they are at.

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6 points

I don’t use Twitter, but if people read tweets the way I do, I never even look at the username unless I’m trying to figure out if it’s the same person replying to another.

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46 points

Self-diagnosis doesn’t help me get meds.

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19 points
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Self-diagnosis doesn’t help with relationships IMHO either and I mean that both from a personal and professional perspective.

Why you might ask?

YMMV but for me, I am an open book. Having the diagnosis meant I could talk to bosses when trying a new med, or explain to them when struggling. Knowing the diagnosis means you immediately diffuse an aspect of a challenge. For me, that has been immensely valuable.

Edit - wanted to add a common counterpoint is don’t let work know because you can’t predict people who will use your honesty against you. I will argue assholes are assholes and you can’t live your life at the possibility someone will be a dick. Most people are good people. Trust on that.

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4 points

Unofficial/self diagnosis helped me in my personal relationships.

I mentioned to my partner that a doctor friend thought I had ADHD, and it really helped them not take some of my most annoying traits personally.

I get where you’re coming from with needing an official diagnosis for work accommodations, but none of your friends are really going to demand to see a doctor’s note, so why would personal relationships depend on an official diagnosis?

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3 points

I get where you’re coming from with needing an official diagnosis for work accommodations, but none of your friends are really going to demand to see a doctor’s note, so why would personal relationships depend on an official diagnosis?

The same reasons as from a professional experience. Yes they aren’t going to pull the doctor’s note but neither is work IMHO. What it does is provide more weight behind your words of “hey I’m not just googling this shit. I’m not just an insufferable asshole looking to validate that I am. I’m actually working with a psychologist.”

Friends, just like coworkers, etc. care less of the diagnosis. They want to know you’re working on you because I’d argue writ large people want to see you succeed. A self-diagnosis can help but it doesn’t give you access to all the tools you may need to succeed so from the outside I would argue that official diagnosis matters. It means you now have someone else on your “team” be it a GP or a psychologist or whatever helping you navigate things.

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1 point

Nobody is suggesting otherwise or defending the medical system here.

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34 points

On one hand, sure just a meme. On the other, it may not be ADHD that’s causing these symptoms and getting a professional diagnosis will help with treatment regardless of what’s going on.

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4 points
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Unless it’s actually detected with some sort of brain scanner, it’s all questions / answers.

For example, I don’t want to get an official diagnosis, because I don’t want it in my medical records, becaus it might impede things, such as getting a driving licence.

Many doctors where I’m from, tried trearing ADHD with antidepressants. Which is like the exact opposite of what’s needed.

Yes, I’m from a weird place.

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19 points
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I understand why people might not want to do it, but personally getting diagnosed and starting treatment has been life changing.

Yeah you don’t need a doctor to tell you your arm is broken, but raw dogging a broken arm is hardly ideal.

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9 points

This post is literally about how hard it is to get a formal diagnosis. Nobody said they don’t want to do it.

I’m trying for years now and can’t get anyone to test me. Treatment is only covered after I have an official diagnosis. And this is in a country with socialised healthcare.

Not everyone is as fortunate as you and can get a proper diagnosis and treatment.
Yeah I don’t need a doctor to tell me my arm is broken, but at least I can get a doctors appointment for that.

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10 points

This post is literally about how hard it is to get a formal diagnosis. Nobody said they don’t want to do it.

This post is about a doctor who makes money from her personal brand, website, books and speaking tours, telling people that getting a formal diagnosis is so hard that why should you bother. And now that you’re emotionally validated, why not visit her blog, store or youtube channel and subscribe?

I genuinely don’t know if her material is good or not, I tend to lean towards it being pabulum and watered-down schlock like literally any speaking-tour psychologist without even reading it. But lets not make any mistake about what’s being peddled here and why.

I don’t really appreciate discouraging people from getting professional care and diagnosis just because you have convinced yourself that your impersonal motivational messages are as good as personalized and in-depth care that a professional can offer.

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5 points

yeah, the last time I tried to get a diagnosis it was a 6 month wait just to meet the doctor for it. And I had to make a phone call too which I avoid at all costs even if it’s detrimental because the anxiety gets to me so bad haha

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3 points
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I’m sorry, I didn’t mean to imply otherwise. But I wanted to share that in my personal experience it has absolutely been worth the effort

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14 points

I’m so tired of this dumb trope. No, your self-diagnosis is not helpful. And yes, you can get diagnosed if you’re poor. There are many ways to do so, you dont have to go through a fancy psychiatrist, and the US public Healthcare system will actually pay for it.

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ADHD memes

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ADHD Memes

The lighter side of ADHD


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