40 points
*

I’m literally never fully comfortable. Even with drugs, my special pillow and laying just right I can get down to a 3/10 pain wise. And that’s without decadent luxuries like going to the bathroom, which rockets everything up to 6/10 for the next hour.

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22 points

Right there with you, goin’ on 20 years of this bullshit!

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6 points

Amen!

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8 points

I almost got arrested for punching someone that said that to me

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5 points

i’ve never been to prison, but have to think being in the hospital is worse. not only are you confined, but also in constant pain. in some cases not knowing if you’ll ever get out

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2 points

What about those in prison who are chronically ill or people who caught something while being stuck in there? Surely they would have it far worse than those ill people in a regular hospital who, technically, can refuse treatment, leave, and even go elsewhere for treatment. That’s not considering the support structures that people in prison are given/allowed, vs support structures generally present in a hospital setting.

Your feelings of being trapped are valid. The frustrations of a less than ideal physical existence are heard. Being ill in any location truly sucks. But depending on the location, you may have more or less freedom and opportunities available to you.

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24 points

I’m experiencing just a minor pain surge from stress right now, and it feels debilitating. It’s hard explaining why a headache or backache takes your out of commission. I live my life at 3/10, so a two point increase makes life REALLY hard.

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Chronic Illness

!chronicillness@lemmy.world

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

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  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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