discharge = discharge from hospital

5 points

Gross a saline and discharge drip? What kind of discharge is it?

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4 points

quick one

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38 points
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31 points

My wife has Endo, and many doctors failed to diagnose it. One even told her she couldn’t possibly have it, because it is a “complicated disease” (okay…? How does that mean she doesn’t have it, dumbass?).

Finally went to some fancy, private practitioner dude that is well known for his study in Endo. He did a simple pelvic exam and said rather casually “yep you have Endometriosis. It felt like you have rocks in your vagina”. APPARENTLY IT WAS SO BAD IT COULD BE FELT, BUT OTHER DOCTORS WERE TOO INCOMPETENT TO NOTICE.

Really lost a lot of respect for the average doctor after that.

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20 points
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Have a candid enough conversation with your wife/sister/mother/female friend and if they’ve been alive long enough to need a doctor, they probably have stories that will back this up. My wife, my mother, and my mother in law do.

My wife brings it up routinely (and she’s not at all the stereotypical feminist) when we discuss such things.

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60 points

Applies to young males, too! if you look able to work, doctors don’t give a shit. Mine even gaslights me about the pain I am in

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27 points

Similarly, my husband has tattoos and a beard. He’s also in chronic pain from old injuries and some other health issues. He doesn’t drink or do drugs, barely takes OTC stuff either because it interferes with his medication for HBP and stuff. Staff and doctors usually assume he’s drug seeking and just want to send him home without trying to help.

Finally found a doctor that actually sees him and not his tattoos and tries to help. It has taken years.

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14 points

Adding, we are not young.

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14 points

Especially young black males

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5 points

Weirdly old men, in my experience at least, tend to need to be in dire straights for THEMSELVES to acknowledge they need to see a doctor.

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2 points

My stepdad died this way. He had a heart attack, but kept standing. According to my mother, he could barely stand straight and breathe. He didn’t go to the doctor and my mom believed he was fine when he said so. I was there when he got the another heart attack 3 days later. He came to, but had another heart attack later that day and died in the hospital.

And what for? To uphold an image? Is an image more important than the people who love you?

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107 points

This sometimes doesn’t work. My wife is severely ill. Has been for years. A couple years ago she developed a wound on her heel that just wouldn’t heal. She spent a week in hospital while doctors tried to figure it out. In the end, they just thought she was fucking nuts given her constellation of symptoms and the fact that she is a woman. This dumbfounded me because she had a fucking wound on her heel. I told her that the wound was finally proof that she was sick and it was a good thing. Man I was fucking so wrong.

We finally found an expert in mcas who was like, yep you have mcas, you are the worst I’ve ever seen and here is a med for it. She is still severely ill, but her heel wound, which inspired no curiosity in the hospital doctors, is finally closing.

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33 points

TIL about MCAS. How horrible, I hope they can cure it someday.

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16 points
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I thought MCAS was the thing that was crashing the 737 Max 8 planes by pushing the nose down.

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11 points

No that’s called short term gains

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5 points

It’s looking to be possibly more common than was thought, around one in twenty people, so you probably know someone with it. The symptoms vary significantly in type and severity. Some people are completely disabled, others have no idea they have it. I have it and mine is medium spicy - I can manage it with a shit ton of drugs and lifestyle changes. Still hoping for a cure as it fucking sucks.

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5 points

Hey fellow MCAS person (well, their spouse)! I was reading your comment and was thinking “that’s sure as shit MCAS”. Surprise!

Glad her heel is doing better. If you ever need any MCAS advice, I’ve been managing mine for years and know a number of other folks with experience. I’d bet dollars to donuts we’re all in the same geographical region too, so I may be able to recommend some doctors if needed.

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5 points

Thanks for this. She is currently seeing a guy who collaborates with Molderings and Afrin. He has tons of publications and is spending a lot of time with her. She sent him a letter describing her illness because he was closed to new patients. He called her and talked with her for 2 hours on the weekend the day after he got her letter. So we’ve got the Dr thing covered.

She’s real bad. I am her full time care giver because the pain and sensitivities are so debilitating for her.

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8 points

Hey! I have MCAS too! Shit sucks

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3 points

I’m sorry. It does blow pretty bad.

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5 points

Its like my nail in the coffin.

I’m already bedridden because of two other chronic illnesses and then a covid infection somehow made me develop mcas

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16 points

I have so serious side effects from my anti-seizure medication it literally disables me more than my seizures (note that I rarely had seizures, it was just too scary for my parents), but every complaint of mine was just dismissed.

  • Trouble with sleeping? Just sleep more, you will have more dreams and more health since more sleep means more health.
  • Trouble with memory and concentration? Either just try harder, or take notes about every small detail.
  • Weight gain even with a diet? Give up all your other hobbies and become a full-time sportsman!
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9 points

I’m so sorry everyone is so invalidated.

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2 points

What medication?

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3 points

Valproic acid. It’s so infamous as a mood stabilizer that Scientologists were using it as their example of “bad medications”, but once toxic positivity around mental health care became fashionable, people were forced to wipe the internet on documenting their misfortunes with the medication.

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